Background

Resulting from the Canadian Retinoblastoma Patient Engagement Strategy and hosted by the Canadian Retinoblastoma Research Advisory Board (CRRAB), historically, the Retinoblastoma Research Symposium is a two-day in person meeting but we have been working on making the event easier to attend for everyone who is personally or professionally connected to retinoblastoma. View our blog for highlights from the 2023, 2022, 2021, 2020 and 2019 symposia.

The Canadian Retinoblastoma Patient Engagement Strategy:

Led by the Canadian Retinoblastoma Research Advisory Board (CRRAB) (see below), the strategy aims to create meaningful, co-directed retinoblastoma research that is relevant to those affected by retinoblastoma and improves outcomes. Three primary objectives of the Canadian Retinoblastoma Patient Engagement Strategy are to:

1. Share research results with people affected by retinoblastoma;

2. Include a large diverse group of people affected by retinoblastoma in research; and

3. Promote research that is created and led by people affected by retinoblastoma.

CRRAB:

CRRAB was created December 2016 and is comprised of retinoblastoma survivors, families, health professionals and researchers. The general membership includes people affected by retinoblastoma (e.g. survivors, the immediate family of someone diagnosed with retinoblastoma), clinicians, allied healthcare providers, researchers, patient engagement experts, and policymakers. CRRAB’s aim is to create meaningful, co-directed retinoblastoma research that is relevant to patients and improves outcomes.